News & Media Coverage

More Information on MPS Type VI

Lysosomal Storage Disorder Support Society, India

Article Describing the Helplesness over MPS in India

#HelpSaveAvishi is a Crowdfunding initiative by parents of 4.5 yrs old Avishi to help her survive the rare genetic disorder Mucopolysaccharidosis Type 6.

The hospital cost at UMC Utrecht, Netherlands is 1,94,000 Euros or Rs. 1.47 crores + Rs. 48 lakhs towards 1-year living expenses abroad. Total cost of treatment is Rs. 1.94 crores approximately. Dr. J J Boelens from UMC Utrecht is a renowned expert in treating MPS.

Contact Us
Abhisek Jain / Shikha Jain
[parents of Avishi]
193, Nemisagar Colony, Vaishalinagar, Queens Road, Jaipur-302021 (Rajasthan) INDIA

Phone: +91 9672455550
E-Mail: /

We whole-heartedly thank you for your love, support and generosity !